"I've had enough today"Well, we didn't quite have the day we hoped for, but are thankful for what we did have and remain faithful that the Lord isn't through yet. Her blood gases weren't any better this am and actually became a little worse during the night so instead of turning the vent down, it had to go up a little. Lily also had an exciting morning when her vent tube came out and she had to be re-intubated (putting the tube back in). Her nurse said she tolerated it all very well and even tried to breathe on her own.
Daddy got to visit today but unfortunately we were not able to hold her. I did change a very dirty diaper which had quite an odor, enough that we had to air out her isolette!! Way to go Lily!
Her feedings were increased to 6cc today and so far she has tolerated them well. She will continue to get a dose of Lasix each day for 3 days to help with the fluid on her lungs.
She is still her feisty little self, moving around and opening her eyes. We would ask that you continue to pray for her lung development and that she be able to wean off the vent soon. We are so thankful for all that she has overcome already and know that we could be dealing with so much worse. God is good all the time and He is reminding us that our timing is not always His timing. We will continue to be patient knowing and fully believing that Lily is in His hands and that He alone has the power to heal her to completion. "Praise the Lord..."
"May the God of hope fill you with all joy and peace as you trust in Him." Romans 15:13
Daddy got to visit today but unfortunately we were not able to hold her. I did change a very dirty diaper which had quite an odor, enough that we had to air out her isolette!! Way to go Lily!
Her feedings were increased to 6cc today and so far she has tolerated them well. She will continue to get a dose of Lasix each day for 3 days to help with the fluid on her lungs.
She is still her feisty little self, moving around and opening her eyes. We would ask that you continue to pray for her lung development and that she be able to wean off the vent soon. We are so thankful for all that she has overcome already and know that we could be dealing with so much worse. God is good all the time and He is reminding us that our timing is not always His timing. We will continue to be patient knowing and fully believing that Lily is in His hands and that He alone has the power to heal her to completion. "Praise the Lord..."
"May the God of hope fill you with all joy and peace as you trust in Him." Romans 15:13
2 comments:
holley... sounds like an exhausting day! i pray that you and greg are full of joy and peace tonight, and rest in the Lord...
loving the pics and videos...
goodnight, friend
love, jennifer
Sorry to hear about the ups and downs. It was wonderful to hear the good news about Lilly's heart!!We will keep her in our prayers about her lungs. Thank you two for the update. You have a considerable amount of Bham praying for you.
Love you guys,
Robyn
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